MILESTONES IN THE JOURNEY

On April 7th, I celebrated a special milestone: eight years since my mastectomy. This day was filled with mixed emotions as I reflected on the anxieties of the uncertainties I faced in the past and those I still encounter today. However, my gratitude for this incredible journey far outweighs those feelings.

My breast cancer journey began a few months before my mastectomy. I was diagnosed in early October and underwent several months of chemotherapy before the surgery. By April 2017, I was ready to take that next step, though it was a terrifying prospect.

I made it through the surgery with flying colors!

Each year has brought its own challenges and victories, and I have learned to truly embrace the strength I have gained along the way. I recognize that I would not have come this far without the unwavering love and support of my family and friends; they have been my rock throughout this journey. 

As I reflect on this experience, I am struck by the range of emotions I can feel at once. It serves as a reminder of how far I have come and the importance of every step I have taken.

MARCH-LYMPHEDEMA AWARENESS MONTH

I can't believe I waited until the last day of March to mention that March is Lymphedema Awareness Month!

After my mastectomy, my surgeon informed me that I had a high risk of developing lymphedema due to the surgery, radiation, and lymph node removal. He referred to me as a "triple threat." He encouraged me to see a lymphedema therapist for baseline measurements so we could assess how much larger my arm had become if I started to experience symptoms. He also provided other important information on the subject. I have since learned that some oncologists and even breast surgeons do not discuss lymphedema with their patients, which is shocking to me. What the heck??

Living with lymphedema has been challenging—physically, mentally, and financially. Unfortunately, I experience pain or discomfort from my lymphedema on a daily basis. Finding attractive and comfortable clothing that can effectively camouflage my much larger arm is often stressful and difficult. Additionally, the costs of compression garments and physical therapy sessions can add up quickly. Fortunately, advocates like actress Kathy Bates and many other supporters have worked hard to ensure that Medicare and insurance companies now cover most of our needs!

Today, I visited Cavell's, a specialty boutique that sells mastectomy and lymphedema supplies, to get fitted for new bras and lymphedema garments. It’s hard to believe, but some insurance companies still consider compression sleeves "cosmetic." Seriously??

I want to emphasize the importance of taking proactive measures regarding lymphedema if you are facing a breast cancer diagnosis. It’s essential to ask questions, research, and seek a qualified lymphedema therapist. Hopefully, there are more available than there are in my locality.

HAPPY TO ANSWER QUESTIONS

I am happy to answer any questions I can on the subject. I will soon post updated photos of my lymphedema arm and some pictures of the items I purchased today.