On April 13th, my son married Alison, the love of his life, and this Mama couldn't have been happier!
Not a dry eye in the house after this beautiful ceremony! |
Robert, Alex, Conor, Pam, Nick |
Don't ask!! LOL |
On April 13th, my son married Alison, the love of his life, and this Mama couldn't have been happier!
Not a dry eye in the house after this beautiful ceremony! |
Robert, Alex, Conor, Pam, Nick |
Don't ask!! LOL |
I recently received a heartfelt message from a dear old friend who has just been diagnosed with breast cancer. She reached out seeking advice on coping with the stress that comes with the diagnosis.
Understanding my friend's fear and anxiety, I called her right away. We talked a lot about her diagnosis and how she was feeling about starting chemo. I shared some tips based on my own experiences with chemo.
Even though she first got in touch to talk about dealing with the stress from her diagnosis, we didn't actually get into that much during our conversation. But we agreed to talk again soon, and I'm sure we'll focus on that more then.
In the meantime, I felt compelled to write a blog post on the subject.
In October 2016, I was diagnosed with-
Grade 3
Stage 111C
Estrogen-Positive
HER 2-Negative-
Invasive Ductal-Carcinoma
I received chemo first, then a mastectomy, followed by radiation treatments.
I'm not going to lie; it was tough at times, especially chemo.
Oddly enough, the mastectomy wasn't as bad as I had expected.
Radiation wasn't too bad, other than some burns and blisters I experienced at one point. Postponing treatments for a week and using some cream the doctor gave me took care of those pretty quickly.
In November 2020, after a scan revealed a spot on a lymph node that hadn't been seen before, I was sent for a biopsy. The biopsy came back positive for cancer. When my doctor said that with this recurrence, my cancer was no longer curable, I was hit with a flood of questions. What did that mean? Was it metastatic breast cancer? Stage 4? Was it terminal?
After the initial shock, I found the courage to ask the questions that were on my mind. I was reassured to learn that while there's still no cure for metastatic breast cancer, it's now highly treatable. Thanks to advances in treatments, it's no longer the dire diagnosis it once was. Instead, it's viewed as a chronic condition, and people are living longer, with a better quality of life.
After leaving the doctor's office, a nurse gave me a card for a "Cancer Training Class?!" I mumbled under my breath, "Thanks, but this ain't my first pink rodeo." I'm not sure if she heard my comment or if she read the look on my face, but she then explained that with a recurrence, the treatments can be different, and the stress level might increase. That's why they offer the class to patients who have received a cancer diagnosis, whether it's your first time or not.
On a side note, the phrase "This Ain't My First Pink Rodeo" kept coming to mind over the next few weeks. Eventually, I decided to use it as the name for this blog.
DEALING WITH THE STRESS THAT COMES WITH THE DIAGNOSIS
BLOGGING HELPS
I've found that sharing my experience with breast cancer through writing really helps me sort through my thoughts and feelings. I never thought of myself as a writer, but I hope that blogging isn't just therapeutic for me but also helpful for others dealing with similar challenges.
FAITH
I have tried different methods to manage stress over the past few years. Some have been helpful, while others not so much. However, when it comes to dealing with the stress of my diagnosis, I cannot emphasize enough how much my faith has helped me through this journey.
I understand that not everyone reading this shares my beliefs, and I respect that. I've never been the type of person to push my faith on others. However, the person who asked me to share my story shares my Christian faith, so I feel compelled to discuss how much my faith means to me and how it's been such a source of comfort during tough times.
FAITH OVER FEAR
In 2016, when I first received my diagnosis, I was overwhelmed by fear. When I expressed some of those fears to a friend, she quickly replied that I should not allow my fear to be bigger than my faith.
We've all encountered the saying "Faith Over Fear" on social media, on T-shirts, devotionals, and other such items. So, it seems pretty simple, right?
Many people seem to have faith easily in every situation, but for me, it hasn't been that simple. I often wake up feeling fearful and doubtful, with no sense of choice. My heart is anxious from the moment I open my eyes.
Yes, I'm human, and I sometimes let fear take over without consciously deciding to. But I'm working on choosing faith instead of fear and anxiety. It's not always easy, but over time, it has definitely gotten easier for me.
I believe it's important to plan for the future and set goals but not to spend too much energy worrying about it.
HOW TO LET FAITH BE BIGGER THAN FEAR
For me, having faith and letting that faith be bigger than my fear means trusting in God and not letting fear control my life. But does this mean I shouldn't listen to medical professionals?
Absolutely not! I am firm in my belief that God created us as intelligent beings and bestowed upon us the ability to develop medicines to help heal our bodies. Doctors are a gift from God, playing a critical role in bringing about healing and recovery.
I've had some intense discussions with people about issues like COVID-19 vaccines and my cancer treatments. It's frustrating when someone insists that trusting medical professionals and scientists means I don't trust in God. Seriously? In my view, God has given us intelligence and common sense, and He expects us to use them, especially when it comes to our health.
I trust my team of doctors and nurses completely and faithfully follow their treatment plans. However, when it comes to making tough life decisions, I turn to God for guidance because my ultimate faith lies in Him.
I really believe it's crucial to have a solid plan for medical treatment when fighting cancer. But for me, having a spiritual treatment plan is just as important. It really helps me stay hopeful and strong and keeps my faith stronger than my fear.
MY SPIRITUAL CARE PLAN
So, the trend continues with another somewhat whiny post. I'm sorry, but honesty is essential, right?
Well, I can honestly say I have had a rough few weeks.
As I mentioned in my last post, I've been dealing with neutropenia and everything that goes along with that.
When I saw my oncologist a week after that post, my numbers were up a little, but the doctor decided I should still only take one Verzenio pill a day instead of the full dose of 2 a day.
Not taking the full dose makes me very nervous because the pills have been working well, and I hate to rock THAT boat.
LYMPHEDEMA
As I've said before, lymphedema is "not just a little swelling." It affects us physically, practically, and emotionally.
Sometimes, even though I am so thankful for the treatments that have kept me alive, I feel it's unfair to have to deal with these side effects from those treatments.
Oddly enough, I think I get more distraught over the lymphedema than I do with the fact that I lost a breast?!
Buying a new dress or top can be an ordeal. I either have to find something with balloon-type sleeves or purchase something too big for the rest of my body to accommodate the affected arm.
I have mentioned how happy I am that my son will marry his beautiful fiancee next month. However, finding an attractive, appropriate dress that would camouflage my Popeye arm was challenging! It didn't help that most of my searching had to be done online because it is so risky being in crowds in the malls and in other stores, with me being so immunocompromised.
However, I am happy to announce that I have found a dress for the wedding, complete with big, beautiful, puffy sleeves that make the big arm less noticeable! Now for the shoes, purse, undergarments, etc. I am beyond excited for April 13th!!
I will post pictures after the wedding!
BUTT NOW.....SHINGLES???
Nope, I didn't misspell but! I have been dealing with a shingles outbreak for about a week and a half. And, of all places, the rash/blisters started on my left buttock.
The doctor said I should do everything possible to prevent the blisters from bursting. He also said this is not a good place to have shingles. Really? Is it NOT?
I was started on an anti-viral medication immediately and have since been given a prescription for Gabapentin to take at bedtime for the severe nerve pain I am experiencing. I was also prescribed Tramadol to use for the next week or so as needed.
The rash has now spread all down my leg, but I can see no new blisters. Hopefully, this will end soon.
If you are eligible for a shingles vaccine but have been putting off getting one, I strongly urge you to immediately get the first of the two shots!
I will see my Oncologist on Tuesday for my regular monthly visit for labs, doctor's visit, and, hopefully, my Faslodex injections (part of my cancer treatment.) I am praying the shingles will be much better and my ANC and WBC are both improved at that time.
I sincerely hope I have nothing to whine about when I write my next post!
Y'all take care!
While I would like all of my posts to be upbeat, positive, and motivating...I need to keep it real, folks. And the reality is...CANCER SUCKS.
I am so thankful for the advancements in cancer treatments that increase survival rates and even offer hope for a cure for more people, but these drugs can come with some nasty side effects for many of us. Neutropenia is one of those side effects.
WHAT IS NEUTROPENIA?
Neutropenia is a medical condition where the level of white blood cells (neutrophils) in our body becomes abnormally low. Neutrophils play a crucial role in protecting our body from infection; without them, our immune system can't function properly. As a result, when we are neutropenic, we become more vulnerable to frequent infections, and some of these infections could be life-threatening.
Neutropenia is most often diagnosed by a routine complete blood count (CBC), which most cancer patients have regularly. I quickly became familiar with my WBC and ANC numbers when I was going through chemo treatments. I have had a CBC done at least once a month since 2016.
Neutropenia can be triggered by:
My numbers were steady for a while. Consistently low but within an acceptable range. And thankfully, the Verzenio has been doing its job! However, my numbers started dropping recently, causing my doctors to keep me off of Verzenio for a week. We have now cut the dosage back to one pill daily instead of the usual 2, hoping the numbers will return closer to normal.
Even though I've had to follow at least some neutropenic precaution guidelines for a long time, right now, I have to be even more strict. My numbers are the lowest they've been in a long time, and due to the number of cases of flu, RSV, and COVID-19 in our area, I've been advised to just hunker down at home for now.
AND....this sucks on so many levels! I missed celebrating my 70th BD on February 4th and my sweet boy's 23 BD on February 5th. Also, my son, Nick, is marrying the woman of his dreams in less than 2 months, and I need to be out shopping for my dress, shoes, jewelry, and other assorted items!
My doctor put me on a strong antibiotic last week when I saw him after getting my labs done because a tiny scrape on my finger looked like it was getting infected. Left untreated, even something that minor could send me to the hospital. UGHHH.
Some of the recommended neutropenic precautions-
Hey, Y'all!
I hope the new year is treating you well so far!
In my previous post, I shared my New Year's resolutions. There are only 2, but they are pretty powerful and require some solid goals to accomplish them.
My Resolutions-
To- Focus on strengthening my physical and mental health.
RESOLUTIONS.
As a cancer patient/survivor, I felt it essential to come up with resolutions that encompass my total well-being, physical, mental, and spiritual.
I only made 2 resolutions. Both are huge, but the second one is probably the most powerful resolution I could make.
Resolution #1
To focus on strengthening my physical and mental health.
To continue to move forward with hope, faith, humor, and optimism.
This second resolution is more geared toward my mental health and happiness. A commitment to worrying less, laughing more often, and spending more time in prayer.
Happy New Year, Y'all!
Last month, I visited the Cancer Center for my regular monthly appointment and saw my oncologist of eight years for the last time. Dr. Saker...